Lieven Bauwens, chairman of our partner-organization IF, the International Federation for Spine Bifida and Hydrocephalus addressed the member states during a conference of the United Nations. During his speech, he advocated for the registration of children with a disability, starting at birth. Today, an impairment is only registered from the age of three. Due to this gap, there is no correct information or numbers about children with birth defects. Watch the video here.