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words 115
Ever since she was born Liesje didn't stand a chance. When she dies at the age of 11, her parents are left behind speechless. Those 11 years were spent living intensely with a daughter with a severe disability, with the entire family, and with the prejudice of the environment. More than ten years after the death of his daughter, Pierre Mertens writes down his story. Searching for the meaning of the birth and death of his daughter with Spina Bifida, words like disability, love, comfort, support, help, solidarity, health care, ethics, euthanasia and abortion take on a new meaning to him.

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