Child-Help is building Houses of Hope near reference hospitals where our children receive life-saving neurosurgery. Houses of Hope take care of parents and children with spina bifida and hydrocephalus before and after surgery.
They inform, support and strengthen the parents and facilitate contact with the care providers in the hospital.
These houses want to be a "home" for these parents who are going through a difficult period with their child. Assisting them often creates a lasting relationship that is important for parents and child. Contact with fellow sufferers is in itself helpful, they no longer feel alone.
After discharge from the hospital, the first days are crucial for the healing process.
Parents sometimes travel with their children for days to reach these hospitals and because of their stay at the House of Hope they do not have to travel back and forth for the first medical check-up. Parents are strengthened to start the life of a child with a disability and to be able to cope better. These houses also want to be a home so that parents always know where they can get help and shelter.
Their stay is useful to provide these young parents with information about their child's disabilities, their rights, and to inform them about where to find care. They also receive information about folic acid so that their chances of having another child with spina bifida in a subsequent pregnancy are reduced. Parents of children with spina bifida receive training in continent management techniques and learn how to handle the care and follow-up of their child at home. Because back home there are often no doctors who can assist them.
Crucial for the houses of hope is that they build a good relationship with the hospital, the treating doctors and other care providers. They are unconditionally on the side of the parents and support the professionals in their work. They have a bridging function between the families and the social workers. For this it is important that the hospital management is aware of this cooperation and also sees the benefits. Benefits such as shorter hospital admissions, better aftercare, shunts, etc ...
In that sense, Child-Help sees the Houses of Hope as support for the existing assistance and complementary to the health care of a country. The Houses of Hope do not take over the care of other care providers. They help to make care for our target group in government hospitals more accessible and to improve.