SHIP

SHIP stands for Spina bifida & Hydrocephalus Interdisciplinary Programme. SHIP emphasises a coordinated approach between the different partners in care: the neurosurgical hospital, the CBR centre, ambulant clinics, parent groups and several authorities. This care has to be interdisciplinary and with the disabled child in the centre.

Care shouldn't focus only on the specific medical needs connected with the handicap but also on the general health of the child and the parent(s): Hiv, malaria, inclusion, education and employment.

SHIP facilitates the cooperation between all caregivers. Parents and parent groups are the centre. SHIP wants to strengthen the parents in their important task. Therefore parents -next to all professional workers-  are privileged partners in care. They are coached to raise their children into articulate and independent adults.

Youngsters and adults with spina bifida and hydrocephalus are actively involved in the parental working and are important role models for the younger children. Apart from this they have their own group.

To improve the communication between the professional workers we developed a SHIP passport in which all important facts of the child are noted and the different interventions registered. This passport remains with the parents and later with the child.

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