The care for our children is complex and therefore permanent quality control and adjustments are needed. That’s why Child-Help works together with other organisations. Here expertise is shared and developed. All partners within the platform use the same quality norms and protocols for the treatment of spina bifida and hydrocephalus and for the follow up of children and youngsters with spina bifida and hydrocephalus.
Every year this platform of organisations organises a workshop that gathers the local partners around a current theme in care. Themes like neurosurgery, continence management, inclusive education, parent groups and interdisciplinary care are dealt with. These workshops are inspiring for our partners, they give feedback and can adjust our policy where needed.
In all workshops, also if they are on medical disciplines, we involve the parent groups. They guarantee realistic assistance the best. Each workshop is a meeting point for parents and professionals from the South with colleagues from the North.